Waiting Game 2

Well we waited one week to see if Vega’s counts would improve enough for her to start Maintenance tomorrow, but today’s blood test showed they have not.

Vega’s blood counts 01/10/12

Vega’s counts first, average in brackets behind.

HB (red blood cells)- 9.1  (9.5-15)

WBC (white blood cells)- 1.15  (4.5-11)

Neutrophils (infection fighting part of the white blood cells)- 0.13   (>1 is not neutropenic, normal range starts at 3)

Platelets 501  (150-550)

If you scroll down to last weeks blog post you can see that counts are improving, especially her red cells and platelets are doing great, but her neutrophils have only recovered marginally- we need to be at 0.75 to start maintenance. Hence, maintenance is put off for another week, nursery is put off for another week and we are still hovering around Vega with a thermometer in hand because she might still get a bug or febrile neutropenia.

Meanwhile though she is well and happy and is enjoying not having to take any medication except her weekend antibiotics. She has had a few bad nights, when she woke up whimpering and crying because her feet hurt. I am not sure if it is the Vincristine or the new nerve cells growing back, which I read somewhere can be very painful too. I have begun to massage her legs again, every evening and it seems to improve the pain later in the night. She gets bored but we are quite used to entertaining ourselves at home by now.

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Everyone in this family has a nasty cold and it leaves me baffled but thankful that Vega doesn’t have it.

Our team has completed our Shine charity walk this Saturday night, 13 miles in almost exactly 4 hours and we have raised almost £2000. Thank you all so much for your generosity and giving your money to this very worthy cause. After Ray’s ride and our walk I can imagine you are feeling a bit “charity-ed” out, but if you still feel like donating, either to Cancer Research on my page or to the Marsden on Rays’s page, then you will be able to do so for a few more weeks until our fundraising pages close. We have quite a collection of fundraising medals here now, definitely something we want to continue- Ray is planning a bigger ride and I think I might try myself on the Marathon next year.

Again, thank you all so very very much!


2 thoughts on “Waiting Game 2

  1. Hi sweetie,

    So glad the platelets n red cells are up and fingers crossed for the others to keep improving – loving the photos!! but cant see the ones of you n Ray??

    Yes, take it from me nerves regrowing are painful at times and/or irritating, weird n wonderful – kind of like a bowl of rice crispies snap crackle n popping in your legs n radiating all over. it’s different for everyone but massage ALWAYS helps me – soothes and calms – so carry on with that – plus if you massage her into the direction of the joints (talking about legs here while she is lying on her back, and so bending her ankle n knee it will encourage the push pattern and connections thru her leg – strengthens the step pattern after damage and weakness of chemo)

    i adore the pic of her creative head cover – made me smile. So i am sure maintenance will come in its own time and in the meantime enjoy the welcome break from meds (she says with trepidation at not jinxing those neutrophils!!)

    huge hugs sue xxx

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