I think it was inevitable that I would write a post like this one at some point. I don’t know why today is the day. Everything I am about to put into words is about today, and I might change my mind and opinions about this by tomorrow already.

We have been invited to a special afternoon tea, by Children with Cancer Charity, who have also hosted last years’ Zippo Circus event, you might remember my blog. It is going to be held at the House of Lords, an event to celebrate and acknowledge the scientific advances made by researchers in the field of childhood cancers.
Lyra, who in her own words, has ambitions to become “a scientist” is excited to meet some “scientists”. She told me that she is going to ask them why Vega is ill.

At the same time, Macmillan Cancer Charity have this week published a report that projects 50% of Britons will face cancer during their lifetime by 2020.

A few months ago I wrote a rather impromptu reader letter to a magazine, my reaction to a Pro/Cons debate about childhood vaccinations. The debate highlighted, on both sides, the need to either vaccinate or not vaccinate for the benefit of the child to be vaccinated/ not vaccinated. I wrote a personal letter about our situation and that sometimes things are not quite as straight forward as for or against. I wrote that I was faced with making many decisions that weren’t easy or straight forward and that the question of vaccinations involved many more people than just the child in question. By all accounts it was a very personal observation. The following issue of the magazine was published last week and someone had taken the time to reply to my letter, in great depth. The lady who responded wrote about her choice not to vaccinate, a very passionate and well researched response. She wrote that one of the reasons she chose not to vaccinate was the fact that vaccines and their “ingredients” are cancerogenic. Although she never actually wrote it down, I felt she was implying that the MMR vaccine I agreed to administer to Vega could very possibly be the reason why she has cancer.

So my week has been full with this. Thoughts revolving around cancer, and why we get it. Why, out of all the children in the world, Vega got it.

Of course I have wondered the same thing. Over and over, during my sleepless nights, cradling my sick child, while holding sick bowls, while watching yet another bag of chemo dripping into her tiny veins. I have thought about the food I ate while I was pregnant, the urban environment we live in, the congested stinky London air, the wifi, the electro smock in our flat. I thought about the meat we eat, the diary we drink. And yes the vaccines. Of course I thought about the vaccines. Hell, during our worst times I thought I didn’t deserve her. That it was fate she got ill, because she was supposed to be a star and not a little girl.
As a mother I am living with the fear, the guilt, the possibility that I did something wrong, made a decision at one point that made Vega ill. It doesn’t stop at diagnosis either. I can now torment myself with the question of treatment choices. Did I do the right thing when I signed the consent to commence chemotherapy? Should I have taken her to South America where they know the truth about cancer and have a simple cure, based on diet and herbs, untouched by the huge pharmaceutical companies that rule the market in the Western World, and whose goal it is to keep people sick and their pockets full. What about all the blood products? Should I have refused? And the antibiotics- arrgh the bloody antibiotics!
Well people I digress.

But really. Of course I have thought about all this. And clearly even Lyra is thinking of it. We are all wondering why. Why Vega, why us?
I don’t know. And I have learned this last year that tormenting myself about it really doesn’t get me any closer to the answer.

(This is not a good place to end this blog post. I don’t want to seem ignorant, as if I am sticking my head in the sand, so to speak. I am trying to be a well researched, sensible, intuitive mother with a good dose of scepticism and suspicion. But one can drive oneself mad. And there are only so many hours during the day. Try walking in my shoes and you will understand. I really truly hope I am doing the best I can, and that it is the right thing.)

1 thought on “Why

  1. WHY – Why did my friggin internet crash last night right at the point i had typed a long response to you, clicked send and find myself re-directed to a page that says ‘unavailable’…. aaaarrrgghh…. then this morning i am thinking how cancer can redirect you to a path that is so hard to put into words (except your raw sharing speaks so well) unless as you say you walk in your shoes! so having spent half hr on the phone to internet people and being told they were doing ‘maintenance’ i had to smile at the analogy of it all, the frustration and annoyance. Bloody maintenance!

    So newspaper respondent woman – i am sure she is doing her best too, but she hasn’t walked the shoes of a Mum with a seriously ill child and hasn’t faced the terror and torment and desperate vulnerability of feeling out of control of treatments and regimes and the daily worries of a path you don’t want to be on.

    Everyone here knows how far and deep your resources and more importantly LOVE for your wee one has continually taken you – and you love so profoundly!! So i hope the ‘whys’ swirl then settle and make space for some ‘whats’ – what precious moments you have with your girls (thinking of gorgeous Lyra in a white coat and microscope with her bold statement for the scientists) borne out of the painful journey you’d rather not be on. The ‘whys’ don’t help, but maybe distract for a while from the pain of the torment of the awful feelings that abound.

    You are very loved Kathi and i look forward to seeing you tomorrow. You touch so many lives with your honesty. hugs to you all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    ps happy to trade whys, what ifs and how comes if you need or just chuck em aside for a while and picnic in the garden – weather permitting x


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